Parental perspectives on consent for participation in large-scale, non-biological data repositories
نویسندگان
چکیده
منابع مشابه
Parental perspectives on consent for participation in large-scale, non-biological data repositories
BACKGROUND Data sharing presents several challenges to the informed consent process. Unique challenges emerge when sharing pediatric or pregnancy-related data. Here, parent preferences for sharing non-biological data are examined. METHODS Groups (n = 4 groups, 18 participants) and individual interviews (n = 19 participants) were conducted with participants from two provincial, longitudinal pr...
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ژورنال
عنوان ژورنال: Life Sciences, Society and Policy
سال: 2016
ISSN: 2195-7819
DOI: 10.1186/s40504-016-0034-6